Updated 1/21/07
Tragedy Strike FWHA Family this Holiday
Season
Below is a
letter from Tanya Rauenhorst (ServiceMaster) updating their current situation.
There are plans in the works for a donation fund and information will be posted
here when available.
Fundraiser-Wine Tasting
Saturday,
February 10, 6-9PM
Fairbanks
Elks Club
Tickets are
$25 each
Tickets can
be purchased at:
the Elks Club, West Valley Vision Center, and Play It Again Sports
There will be
a silent auction, live bank and food.
If you are
interested in making donations please contact
Barb Keys at
bkeys@acsalaska.net.
Thank you very much for your support!!
And a big thank you to Alaska Distributors
for donating the wine!
They have a
website with a journal at:
http://www.caringbridge.org/visit/kaylarauenhorst
Password:
Fairbanks
Donation
Account under "Kayla Rauenhorst" is at Alaska USA Federal Credit Union
Words of support and encouragement can
also be sent to:
Tanya /Kayla
Rauenhort
PO Box 10573
Fairbanks, AK
99710
or emial:
trhockeymom@yahoo.com
12-8-06
Good afternoon,
I'm sure everyone has heard about my niece Kayla - Tanya's daughter. She was
diagnosed with Osteosarcoma at Thanksgiving and will be in Seattle for about a
year. With T being in Seattle for the long haul their family will be facing a
financial challenge. So Barb Keys has set up a *_donation account at Alaska USA
Federal Credit Union under "Kayla
Rauenhorst_*". Any thing you can give will be used wisely and help
support Kayla in this fight. If you would like to follow how she is doing log
onto:
http://www.caringbridge.org/visit/kaylarauenhorst
Password: Fairbanks
to see how she is doing. Please pass this on accordingly. Thank you!
Respectfully,
Jen aka AuntJenny
PS We hope (Heather H is working on it) to do a fund raiser after the new year!
12-4-06
I just went to Sams and bought a digital photo
frame with 128MB of internal memory. My task for you all (that were on T's email
so forward as needed) is to send me pictures. This can hold up to 2,000 pictures
so send me what you have. Pictures of friends, school, family, animals,
Fairbanks, vacations, sports - what ever you have. Then I will download onto
this 'frame' and send it down to Seattle for Kayla (sure hope T or Mike can work
it). The frame is compatible with most digital camera JPEG images and motion
files....so if you need to stop by the house we can download right off your
camera with a USB cord that would be great!
Or if you want to stop by and see this new cool 'frame' you can do that as well!
Thanks- Jen
fnjlt@uaf.edu
PS For those of you that may not know me I'm Kayla's Aunt - T's sister!
I would like this 'full' by the end of next week so I can get it sent off....
12-1-06
Hello to all of you,
I want to start by saying thank you to every
one. In such a hard time in our families life you have all in some
way made a difference. For thoes of you who are not sure what I am
talking about I will give you a update.
First on the 27th of November Kayla, Mike and
I made a trip to Childrens hospital in Seattle. On the 29th of
November Kayla was diagnosed with a form of Bone cancer called
osteosarcoma after a biopsy. It is a childhood cancer and although
the average age of occurance is 16, it does affect children of all
ages as young as 2. It happens when children are in a growth spurt
and cells are dividing very rapidly. In Kaylas case, it is as they
have labled, is "normal" for this type of sarcoma. Treatment
is also something that is the same for all children.
Next Wed. or Thursday Kayla will start
cemotherapy. Each "round" of chemo will take 5 weeks and the
pattern will be the same. All of her chemo will be done as an
inpatient so she will be watched very carefully. Week 1 will be 3
days in the hospital followed by the rest of that week off along
with the next 2 weeks. I know this sounds good having the "time
off" however this is when she will feel the worst. After the 2
weeks off she will come back to the hospital and weeks 4 and 5 are
the same. 4 to 5 days in the hospital with 2 or 3 days home. We
then jump right back into week one. We have 2 rounds of this
before the surgical procedure to remove the tumor happens and they
put the prosthetic in. After 2 weeks to recover from surgery we
jump right back into 4 more "rounds" of the chemo. The rounds after
surgery will be the same as before surgery. If every thing goes with
no infections or the need to transfuse (which is not the norm) the
entire process takes 30 weeks. They are telling us to plan on being
here for 10-12 months. A long time but we are in the best possible
place we could be. The team of docs that are working with her to
say the least are amazing. Both Mike and I are very happy with the
care so far and have no doubt that we are in the right place.
This is kind of every thing in the nut shell.
We, or Mike is in the process of getting a web page set up thru the
hospital, where we will be able to post pictures and notes and you
all will be able to send messages. As soon as we have this in place
I will get the address out. We would love to hear from you and will
try to keep you posted as often as possible.
Kayla has been a trooper, and although scared
is being amazing. They strength and determination she is showing is
better than I have some days. I am not sure where it comes from but
I am glad it is there. I don't think it has all "sunk in", or if
she is aware of what lies ahead, so we are taking one day at a
time. Please keep us in your prayers and thoughts as we have quite
a road ahead of us. It may be a long one but one we are sure will
end well.
Until next time,
Tanya